Supportive Facebook Chat: Adult-onset Myotonic Dystrophy Basis

Supportive Facebook Chat: Adult-onset Myotonic Dystrophy Basis

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  • These casual digital gatherings might be hosted by mother and father of children residing with type 1 diabetes and adults dwelling with T1D.
  • Written by his son, Dr. Eric Tzy-Shi Wang (???).
  • To sign up for the Facebook live chat periods, visit the calendar on the Myotonic Facebook web page.
  • While the chats are divided by age group, please be happy to join a gathering that matches your schedule—what matters is that you’ve the possibility to satisfy other members of the Greater New England T1D community.
  • Come and meet other members of the T1D group, ask questions, share the triumphs and challenges of T1D, or just drop-in and pay attention.
  • We are overjoyed to welcome Sofia Olmos, PhD, to the team!

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One place we are ready to hunt down that mutual help is inside a support group. And in New York City, look no additional, because Glenda, Guillermo, and Jan are the team of cheerleaders you need within the Big Apple.

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Thus, my dad’s journey in the end served as a guidepost and motivating issue for my life’s work. For extra data on different age teams, please visit jdrf.org/greaternewengland/p/chats-from-home. Our methods have detected unusual visitors activity out of your community. Please full this reCAPTCHA to demonstrate that it is you making the requests and not a robot.

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To sign up for the Facebook live chat sessions, go to the calendar on the Myotonic Facebook page. If you wouldn’t have a Facebook account and are only interested in attending a monthly Caregiver Virtual Support Group meeting, you possibly can register on that webpage right AdultChat here. Due to registration constraints set by Zoom for recurring conferences, we ask that you simply please register individually for every date you can attend. Written by his son, Dr. Eric Tzy-Shi Wang (???). My dad had lived with symptoms of myotonic dystrophy for over 30 years.

Be Part Of Us For Our Adult-onset Supportive Facebook Chat!

These casual digital gatherings will be hosted by parents of children residing with kind 1 diabetes and adults dwelling with T1D. Come and meet different members of the T1D neighborhood, ask questions, share the triumphs and challenges of T1D, or simply drop-in and hear. We are particularly trying ahead to welcoming individuals and families who’ve been diagnosed in the past year! While the chats are divided by age group, please be at liberty to hitch a gathering that matches your schedule—what issues is that you have the chance to meet other members of the Greater New England T1D neighborhood. Consciously dedicating hours of their week to help the myotonic dystrophy neighborhood, these support group facilitators have decided that they’ve the next capability to contribute. I am fairly constantly taken aback by individuals like Jodie Howell and Samantha Welsh, who are actively concerned in their very own communities, but have determined that they have a higher threshold to offer. The Facebook live chat classes are held on a rotating schedule every month, led by one of our Support Group Facilitators.